About LivingMyCulture.ca

LivingMyCulture.ca is an initiative of the Canadian Virtual Hospice and more than 70 partners. LivingMyCulture.ca includes content developed from three projects funded by the Canadian Partnership Against Cancer. Launched in 2016, The Living My Culture project engaged people from 8 cultures to share their stories about the intersection of culture and advanced illness, end-of-life and grief. The Indigenous Voiaces: Stories of Serious Illness and Grief project interviewed First Nations, Inuit and Métis about experiences, lessons learned and words of wisdom about living with advanced illness, dying and grief for those travelling a similar path.

In 2020, Indigenous Voices Phase 2 launched Coming Full Circle, a booklet to guide decisions and discussions on wishes, values, and beliefs about care at the end of life. In fall of 2020, interviews with 50 First Nations, Inuit and Métis will be available as well as a series of cultural competency learning modules for healthcare providers caring for Indigenous People at end of life. We are grateful to, and humbled by, the courageous people who shared their stories for the benefit of others.

Indigenous Voices Phase 2 (2020)

Elders and Knowledge Carriers

  • Helen Gartner YT
  • Louise Halfe SK
  • Peter Irniq ON & NU
  • Mary Jane Kavanaugh ON
  • Rosella Kinoshameg ON
  • Donna LoftON
  • Betty McKenna SK
  • Albert McLeod MB
  • Gerry Oleman MB
  • Roberta Price BC
  • Ruth Mercredi NT
  • Stella Johnson BC
  • Ella Paul NS
  • Jeroline Smith MB

National Advisory Committee

  • Ayo Abdul Alberta First Nations Information Governance CentreAB
  • Savanah Ashton BA, MA Manager, Health Policy & Programs Pauktuutit Inuit Women of Canada ON
  • Usman Aslam MPH Group Manager, Indigenous Cancer Care Unit Ontario Health - Cancer Care Ontario ON
  • Carrie Bourassa Senior ScientistMorning Star Lodge University of Saskatchewan SK
  • Mollie Butler RN PhD Director Professional Practice and Indigenous Health Eastern Health NL
  • Maxine Crow Community Care Coordinator Naotkamegwanning First Nation ON
  • Patty Everson RN Nurse Manager Windigo First Nation Council Home and Community Care Program ON
  • Sylvia Flint RN, BN Regional Home and Community Care Program Coordinator Department of Indigenous Services MB
  • Justine Grenier Planning and Program Officer Nunavik Regional Board of Health QC
  • Bonnie Healy Executive Director Alberta First Nations Information Governance Centre AB
  • Bryan Jorgensen RN, BN, MBA Director, Supportive Care Saskatchewan Cancer Agency SK
  • Elaine MacDougall A/Practice Advisor, Home & Community Care Program Indigenous Services Canada MB
  • Beverly Madill BScN,RN,CCHN (c) Home Care Coordinator Union of Nova Scotia Mi’kmaq NS
  • Lori Manuel Reg PT, BScPT, MHS Regional Physiotherapy Professional Practice Consultant Eastern Health NL
  • Warren Michael Indigenous CoordinatorCancerControl Alberta Alberta Health ServicesAB
  • Julian Morrison Senior Policy Analyst - Health Assembly of First Nations ON
  • Sophie Pamak RN, CCHN (c) Home & Community Care Dept. of Health and Social Development, Nunatsiavut Government NL
  • Susie Pearce Manager Nunavut Dept. of Health and Social Services NU
  • Fancy C. Poitras BA, PBD, MPP Manager, Strategic Policy First Nation Health Authority BC
  • Zenith PooleProvincial Navigation Lead Cancer Care Manitoba MB
  • Holly Prince MSWCentre for Education and Research and Aging Lakehead University ON
  • Lisa Rayner RN, BScN Territorial Manager, Continuing Care Northwest Territories Health and Social Services Authority NT
  • Ashley Turner BA Provincial Wellness Manager Metis Nation British Columbia BC
  • Deborah van Dyck Senior Policy Advisor Department of Policy Advancement Inuit Tapiirit Kanatami ON
  • Allison Wiens Education & Liaison Nurse – Health Equity CancerCare Manitoba MB

Coming Full Circle Development Team

  • Holly Prince Project Lead ON
  • Ted Norris Project Manager ON
  • Angie Saj Project Coordinator MB
  • Shelly Cory Executive Director Canadian Virtual Hospice MB

Acknowledgements

  • Canadian Hospice Palliative Care Association. Speak Up! www.advancecareplanning.ca.
  • Improving End-of-Life Care in First Nations Communities Research Team, Lakehead University. (2015). Developing Palliative Care Programs in First Nations Communities: A Workbook, Version 1, Retrieved from www.eolfn. lakeheadu.ca.
  • The Conversation Project for providing us with permission to extract, adapt, and use material located in the following document: The Conversation Project: An initiative of the Institute for Healthcare Improvement (original can be found at https://theconversationproject.org/. Licensed under the Creative Commons Attribution-ShareAlike 4.0 International License, http://creativecommons.org/licenses/by-sa/4.0/

Partners

LivingMyCulture.ca and Indigenous Voices (2016)

Project Leads

  • Shelly Cory Executive Director Canadian Virtual Hospice
  • Harvey ChochinovChair Canadian Virtual Hospice

Living My Culture Development Team

  • Glen Horst DMin (Team Lead) Winnipeg, Manitoba
  • Shane Sinclair PhD (Team Lead) University of Calgary, Alberta
  • Karen Courtney BA, BSN, PhD University of Victoria, British Columbia
  • Bejoy Thomas PhD Alberta Health Services, Alberta Ingrid See RN, BSN, MEd, CHPCN(c)
  • Judith Sixsmith PhD Simon Fraser University, Vancouver
  • Kelli Stajduhar RN, PhD University of Victoria, British Columbia
  • Mei Lan Fang MPH Simon Fraser University, British Columbia
  • Romayne Gallagher MD, CCFP, FCFP Providence Health, Vancouver
  • Sandy Kwong MSW, RSW BC Cancer Agency, British Columbia
  • Sheryl Reimer-Kirkham RN, PhD University of Victoria, British Columbia
  • Vivian Collacutt BCS (Ed), BS, MSW, RSW Alberta Health Services, Alberta

Indigenous Voices Development Team

  • Kali Leary BSc, MBT (Co-lead)
    CancerCare Manitoba, Manitoba
  • Brenda Hearson RN, MN (Co-lead)
    Canadian Virtual Hospice
  • Elder Betty McKenna
    First Nations University, Saskatchewan
  • Usman Aslam MPH
    CancerCare Ontario, Ontario
  • Carrie Bourassa PhD
    First Nations University, Skastchewan
  • Velda Clark RN
    Saskatchewan
  • Mary Hampton EdD
    First Nations University, Saskatchewan
  • Serena Hickes SW
    Nunavut/Winnipeg
  • Carolyn Jardine BN, RN
    CancerCare Manitoba
  • Mary Lou Kelley MSW, PhD (retired)
    Lakehead University, Ontario
  • Sharol Kohoko RN
    Peguis First Nation, Manitoba
  • Angeline Letendre RN, PhD
    Alberta Health Services, Alberta
  • Donna E. Loft
    Ontario Chiefs, Ontario
  • Audrey Logan BA
    Windsor Regional Hospital, Ontario
  • Phillipa Martee
    Baker Lake, Nunavut
  • Lori Monture RN
    Six Nations of the Grand River, Ontario
  • Laurie Ann Nicholas BSc., RD
    Tobique First Nation, New Brunswick
  • Ted Norris B. Ed.
    Ottawa, Ontario
  • Holly Prince MSW
    Lakehead University
  • Karen Schmidt BEd, CFNHM
    File Hills Qu’Appelle Tribal Council, Saskatchewan
  • Jeroline Smith RN
    Peguis First Nation, Manitoba
  • Marney Vermette RN
    St. Elizabeth

Artists – Print materials

  • Tracey Anthony
  • Karen Bisson
  • Leah Dorion
  • Colleen Gray
  • Gullo Mullins
  • Lisa Perras

National Advisory Committee

  • Brent Schacter MD, FRCPC
    CancerCare Manitoba, Manitoba
  • Carolyn Tayler RN, MSA CON
    Fraser Health, British Columbia
  • Carrie Bourassa PhD
    First Nations University, Saskatchewan
  • Joan L. Bottorff PhD, RN, FCAHS, FAAN
    Canadian Association of Psychosocial Oncology
  • Elder Betty McKenna
    First Nations University, Saskatchewan
  • Kali Leary BSc, BMT
    CancerCare Manitoba, Manitoba
  • Karen Courtney BA, BSN, MSN, PhD
    University of Victoria, British Columbia
  • Keith Wilson PhD, CPsyh
    The Ottawa Hospital Rehabilitation Centre, Ontario
  • Laurie Anne O'Brien RN BN CHPCN
    Newfoundland
  • Lori Embleton
    Winnipeg Regional Health Authority, Manitoba
  • Lorraine Dacombe Dewar
    Manitoba Health, Healthy Living & Seniors, Manitoba
  • Mary Lou Kelley MSW, PhD
    Lakehead University, Ontario
  • Phillipa Martee
    Baker Lake, Nunavut
  • Pierre Gagnon MD, FRCPC
    Laval University, Quebec
  • Serge Dumont PhD
    Laval University, Quebec
  • Vivian Collacutt BCS (Ed.), MSW, RSW
    Alberta Health Services, Alberta
  • Deb Bulych BA, B. Admin, BSW
    Saskatchewan Cancer Agency, Saskatchewan

Family Advisors

  • Sylvie Lalande
    Ottawa, Canada
  • Pam King
    Killarney, Manitoba
  • Kim Grant
    Winnipeg, Manitoba
  • Elder Betty McKenna
    Moose Jaw, Saskatchewan
  • Tanny Nadon
    Calgary, Alberta
  • Serena Hickes
    Nunavut / Manitoba
  • Jacquie Dorge
    Winnipeg, Manitoba

Evaluation

  • Karen L. Courtney BA, BSN, MSN, PhD
    Assistant Professor
    University of Victoria
    Health Information Services
    Victoria, British Columbia
  • Carrie Bourassa PhD
    Associate Professor
    Department of Inter-disciplinary Services
    First Nations University
    Regina, Saskatchewan

Communications

  • Marissa Ambalina
    Canadian Virtual Hospice

Video Content

  • Wendy Rowland BAH, MA
    Director
    Toronto, Ontario
  • Robin Bain
    Cinematographer
    Toronto, Ontario